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When I got my revenge

A while ago the postman delivered a package. What was unusual was his grin and the fact the parcel easily could have gone through the post box. There was no need for human interaction. Unnecessary people, all small talk, and people generally are annoying.

The package was for 'Steven Von Poopenstinker'.

Oh how he and my wife laughed.

What I did was: Did some cute graphics for a website promoting the no-nonsense corporate business software that von poopenstinker and Danielle have been developing.


Then  joked about how we can use them like merchandise. Like the insurance company that gives customers a meerkat toy. I thought that would be funny so I found someone on Etsy to make some toys...





I sent them to the office addressed to Danielle enclosed was a note: "Von sends his regards."

I love their expressions. They are pretty cute really.

We need to manufacture them in the thousands for our marketing campaign. Consumer focussed Asbestos and Fire Safety services.
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When I went to London Town Square last night


It's been a while since the last post. I've mainly been working which is only an interesting topic to half of the regular readers of this blog.

Yesterday we took a train to London. Originally we were going to go to meet my brother at Oxford Street to see the Christmas decorations, shop window displays, and then join the Hanukkah celebrations at Trafalgar square. We ended up being a bit late so we just went to the square and then ate at Garfunkle's. Which was way touristy but really warm inside which was ideal for my frozen extremities as it is for the foreign workforce. Ahah sorry I went a bit UKIP there... We'll go back to worship the corporations next week.

I got given a donut and a Menorah. Donuts are definitely better than wafer thin bits of stale bread.
Judaism is definitely the religion with the best tasting food.




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When the bus driver said no


We were invited to a very close friend of mines wedding over the weekend. It was in Aylesbury. So the day before my wife and I travelled to High Wycombe -the nearest Premier Inn. (Who I must say are pretty good with wheelchair user guests especially in the one near the Empire in London (Shepherds Bush). -this wasn't a paid for advertisement) It was to be a weekend plagued with transport problems.

When we reached Waterloo things started to go wrong. The rail assistance guy was useless and felt he had to repeatedly say "You don't pay extra for rail assistance." Like that somehow made up for his inability to problem solve. I didn't bother to point out that in actuality rail assistance is subsidised by the cost of rail tickets. His idea of travel assistance was to lead us to Waterloo Tube Station where the guy at the entrance informed us that the destination or the surrounding stops had no step free access. He said "right then ok well make your own way." Or something. Luckily then someone from the underground came to offer more help. -eg took us to a bus stop and said wait for 489 or something.

This inconvenience wasn't much of a problem. The problem was I'd bought the tickets for the underground and when I booked the assistance I was told "If the underground is not accessible we'll arrange a taxi for you." Next time I travel to marylebone I won't buy underground tickets.

Artists impression.

So yeah we got to High Wycombe and the assistance was great there. They called a taxi for us and one of them waited with us. He was Ryan and he was really friendly and chatted with us while we waited. He paid for the taxi out of his own money which was pretty decent.

The next day I was travelling to the ceremony in Aylesbury. I was going alone and meeting up with my wife at the reception. Because of her pain condition. Bus 300 took  ~58mins to reach Aylesbury and I could, or so I thought, board at Morrisons. So I left the hotel just after 10am. I was supposed to be early to meet my Dad and Sister in the pub opposite.

I'm at the stop and the bus pulls in the doors pop open. "I'm taking a buggy [pram] there's no space." I reply "But wheelchairs have preference." Because that's the law of the land. "No you don't." Snarks the bus driver. "Take the train." So I ask. "What's your full name and employer?" Then the doors shut and he drove off.

These aren't the actual words. But that's how it seemed.
So I went to take the train. It wasn't a direct train and it only came every hour. So I was late. I arrived as they left! Oh and I was cold and wet because as soon as the bus driver refused to let me on it started to rain. Which was completely the bus company's fault!

Ok so why should the pram move? Because it's f...ing possible. You fold up the pram and hold the baby on your lap.

"But my pram doesn't fold." Well f...ing don't get on the bus till you have one that does, or relinquish the space voluntarily.

But what if the bus already had a wheelchair user on, you would still be upset?
"There are around 1.2 million wheelchair users in the UK, roughly 2 per cent of UK population"
 NHS purchasing and supply agency 2000
"Less than 8 per cent of disabled people use wheelchairs."
 Papworth Trust disability facts and figures 2010
(<8% of ~20% so < 2%)

It's not really likely. It has happened a couple times but it doesn't cause you to think about the chances the next bus is taking a pram and the lacking disability training. Which is why I went to take the train. I'd have waited for the next bus if that was the case.

So yeah people are selfish I just read a statistic that 38% of people believe disabled people are a burden on society. Interestingly roughly 38% of people are out of work. I'm not saying they are the same people but I am saying that when I'm out and need help with a door or something it's usually the smartly dressed professionals who offer help not the tracksuit and legging clad stereotypical benefit claimants.

28% believe there is ill feeling around perceived extra support. I've been there needing personal care and help taking a shower. Extra support is no picnic. I think genuinely disabled people if they had a choice would choose not to need support.

27% believe disabled people are treated differently because there is a lack of knowledge around disability. I'm not sure what that even means. People should be treated differently. Like rail assistance don't need to follow everyone around laying a ramp over the gap. There should be better education in schools for sure. 65% of people admit avoiding disabled people because they don't realise we are all people! That statistic is pretty depressing.

The bold% are from BT - 'Ready, Willing and Disabled Event 2011

Society isn't that good to wheelchair users. We have our ramps and people to lay ramps but most people think that's enough. Life is often significantly shorter, accomplishments significantly harder to achieve, often quality of life is substantially lower, and independence is discussed with people who are either under qualified or grossly incompetent. Or if you do find you have a social worker who understands and represents your best interests... They lose their job -thanks Austerity cuts!

When will the nightmare end

Friday began with a trip to the Golden Arches to get a couple McMuffins. Which I brought home and we ate. I fell asleep with my head on the table. At lunchtime Sarah from the newspaper came around to take some photographs. http://www.portsmouth.co.uk/news/spooktacular-flat-is-transformed-into-a-halloween-haven-1-6392102 There was also a story here:
http://www.itv.com/news/meridian/2014-10-31/terminally-ill-couple-decorate-whole-house-for-halloween/

In the evening we went out for a meal and to watch a movie. To celebrate Halloween and our 2nd wedding anniversary. Originally we were going to leave at around 5-6. However, there was someone who came trick or treating so we decided to wait until later to leave.

We headed out. It could just be this area but 3-4 times on the way to where we were going we got some unnecessary attention. Pointing, laughing, and stuff.

It continued throughout the night. A was really upset by one encounter on the way from the restaurant to the cinema. (A short distance, some may say a stones throw away.) There was a group of people, Revellers even, one of them jumped in front of her - so she stopped. "Oh my god, isn't she just disgusting, look at her she makes me sick..." he was part of a group of about a dozen and no one thought to stop what was happening.

We went to see Horns which was an interesting film. It begins well and it hooks you. It has a good few comical moments. If you're a Daniel Radcliffe fan I'd say to check it out. It is a little sad but any emotional response is soon squashed when the film pushes too far into the fantastical. It's essentially a tragic tale. Gratuitous tits, superfluous comedy, even a scene of homosexuality, drug abuse, and debauchery. A classical bit of drama. This isn't much of a review really.


The plan was to open presents when we got in. The cats had a different plan. Somehow they had (again) clambered up the velvet covering our sideboard which had (again) caused everything on top to now not be. (Again!) This broke a spooky snowglobe A had found in TK Max. So there was glass, water, and bits all over the floor...

When you shouldn't vote


Thinking back to the scottish referendum... The voter turnout was pretty impressive. I thought surely that the UK was breaking up. For general elections (those popularity contests were identical puppets compete to allegedly represent peoples voices in a far away mystical tower of whiteness) the turnout is probably 65% which is infuriating. Are 65% of 18+ convinced by this illusion of choice? For the yes, no question 84.5% of Scottish people over 16 wasted their time voting.

Novel way of counting

I'm not saying it has always been a waste of time nor am I belittling the efforts of people who have campaigned about voter rights. I am saying today the political system is completely corrupt and not upto date. Why can't there be systems for immediate referendum and a more direct form of democracy. Like they have in Sweden but online. Then weird counting methods that look suspicious wouldn't happen.

Also Russell Brand did a book. It's pretty good. You can download it free* here: http://www.audible.co.uk/pd/Biographies-Memoirs/Revolution-Audiobook/B00OKQJYG6
*as part of a free 30 day trial which is £7.99/month usually.

Oh and in other news, hoverboards soon.
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When we ate vegan

In summer just passed while we were in London we met up with my brother and his girlfriend. We ate at 222 Veggie Vegan which seemed much less busy than it ought to be. Probably because we got their real early.
The food was excellent and eating vibrant food full of exciting flavours was really refreshing. It's definitely one of the best places I've eaten.
 It was a shame we didn't have the time to enjoy a three course meal. We had to get to the Empire immediately after we ate. I was quite disappointed I didn't get to try any of the deserts.
If you're ever around West Kensington, London head to 222 North End Road!


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When I rotoscoped


I've noticed that my most popular post was the one about sit-skiing but rather unannounced I had added a short animation featuring some rotoscoping I had done. So I don't know what's more interesting: the thought of me being dragged up a nylon slope face first or the animation.

Today I took off the animation and I'm going to write this entire feature that you have already started reading.

Rotoscoping

Firstly I'll show the animation then I'll explain the creative choices I made, the equipment I used, the sleepless nights, the technique, and some...
It boils. Boiling is a stylistic treatment. It simply means the lines jump around. It may seem like it's a rougher, quicker, and easier way of doing it. But it's not really because every line you want to boil needs to be re-drawn on every frame. To animate without boiling means you only need to draw the new bit.
Frames. To me frames are like something that doesn't need explaining. It's like oneness. A frame is an image. Motion pictures, tv, animation, games, etc all rely on the same premise. It's how the eye works. Further reading.
Line Drawing. This stylistic choice was made for two reasons 1. So I could meet deadlines. 2. Because drawing all the details would have made the animation quite cluttered.
Equipment. I was at uni at the time so I borrowed a camera and tripod to record the motion. Then I had a pen tablet attached to a pc which I did the drawing on. I used professionalI(student license) software back then but if I did it now I would use: Pencil (http://www.pencil-animation.org), avidemux (http://www.avidemux.org)
Planning. First you have to have storyboards or something so you can direct the motion capture part of the process. For me I like storyboards. I abhor stickman storyboards but I guess they do the same thing.
Filming. The first thing you'll do, well after the other first thing above, is to film the scenes to capture the motion. It doesn't matter if you shout cues while recording to micromanage people because you aren't even recording sound. You're the only one with the times, the storyboard, and the vision.
Drawing. Ok so all that now needs to be done is the time consuming and labor intensive task of drawing the frames. I hardly slept for 4 days fuelled by quadruple espressos and red bull.
Simply you take the video file, over each frame you draw the motion and then you remove the video from the view. I added a different background on a new layer that progressively drew afterwards. (That's right it wasn't filmed on location.)

I've started to write down another set of sequences for a rotoscoping idea I have as it is basically motion capture in 2D.

When I made changes

So I refreshed my blog look a little. New me looking logos and typefaces. A few days later I fixed up a Halloween look which will stay for a while. Since Halloween is a big thing for us.

Hopefully my electric wheelchair will arrive soon! I'm also hopeful about finding a new place to live. I really need to have a workspace with space to get a proper computer set up. My laptop just isn't powerful enough.

Oh yeah, I got a house design finished quite a while ago. However, I think I have some better ideas anyway I think I need to prioritise being rich first. I'm sure the new business will do that! Especially my secret division (which I'll tell you about soon). Anyway lets look at the house:
top left: Ground Floor, top right: 2nd Floor (roof)
bottom left to right: Basement, 1st Floor, Overview
Since making this image I have added double doors and a balcony to the main bedroom on the first floor. I realised otherwise it'd be pretty difficult to get furniture up there. The spiral staircase would probably be in marble wrapped around the central elevator.

I wish I was an architect the trouble is I'm enjoying my crucial work in the Asbestos/Environmental industry! Hahahahahahahahahahahahaha.Well anyway I need to be making games. That's what I want to do.



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When idiots say things

The UK Deputy Prime Minister, Nick Clegg, declared Lord Freud's comments, revealed yesterday, about "disabled" people as "deeply distressing" and "offensive". The Welfare Reform Minister suggested that "disabled" people might not be worth the minimum wage.

Those being critical of Lord Freud are being unfair they've sort of labeled the very notion as disgusting when it does have merit. It's the type of idea that needs exploring. 

I'm by no measure a conservative nor am I a liberal. My political ideology is closer to the sort of bubbles Russell Brand chats about on The Trews...
Click for enlightenment
Labour leader, what's-his-face, also attacked the conservatives for thinking outside the box.

I don't speak for all "disabled" people. However, I've experienced how difficult it is to find employment as a someone who uses a wheelchair. I also recognise that being unemployed does make you feel sort of useless, there is time you can do other things but at the end of the day, week, month, year, you've made no contribution to society. Often it's not because it's desirable but because "disabled" people appear unemployable.

I don't know why there is such fuss about this idea. It's not the best way of doing it and taken out of context (of the discussion) it can come across as devaluing "disabled" people and being a little insulting. However, the premise I agree with. Maybe they could offer tax breaks to companies that employ x% of "disabled" people. Which would do the same thing.

EG: Incentivise employers to employ "disabled" people and reduce the welfare bills.
Paying less (Reducing minimum wage) and topping up incomes with welfare will do the same thing. Though as we now know that sort of move will just create headlines.

That was probably the plan.

When I got powered up


So there has been some progress on the power chair front. The other week I went to try out the Alber Emotion, Twion and E-Fix options to see how they worked. I liked how the Emotion and Twions felt but it did take me a lot of concentration to move in a straight line. If you have good coordination they are probably good options but for me I could only move a little faster than I can without them. It's a lot easier to move about though I couldn't use all the power available since I couldn't control it.
Twions (click for site)
emotion (click for site)

For me the e-fix it's a good option. I'm not sure if it's suitable for my chair. If it is I'll get that. If it isn't I'll try to make something similar to it!


My wife got a Power Chair (the first one above) which was only possible because of the donations. So thanks again to people who donated.

... I found a website wheelchairdriver.com and having spent a while looking at powerchairs available on the market I came to the same conclusion. So I'm going to try to build two BM3 chairs somehow, someday.
Just look why I'm impressed BM3
So... If I had free time I know what I'd be doing with it (apart from this blog).
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When we tried uber

Last week we took a short city break in London. My wife's birthday is coming up and she adores Dwight Yoakam who had a date in the o2 Empire.

There has been a lot of fuss about uber the alternative to black cabs hailed via smartphone.
It's a much better system than just paying a meter. The driver has the shortest route. Both parties see the GPS of each other and payment is fuss free and setup via the app. Plus there are discount codes: 87ZIQ will give you (and me) a £10 credit.

I wanted to avoid the fuss of having to take apart our chairs so we were using the hackney carriages. Until one frustrating ride back from the Empire to the hotel... After the cabby pressed some buttons which made the fare jump up my wife asked him why. As he held up a sheet with the charges and pointed to the '2 Passengers with Luggage' he said "I'm not trying to rip you off. I try to help you kind." Wheelchairs and luggage are exactly the same thing, obviously. Then we arrived at the hotel. I'd checked the uber app for an idea of the fair while we waited at the Empire and it was £6-£8. The meter read £18.50! For a journey a little over 1 mile.

He didn't stop the meter and say ok that's £18.50 which was ridiculous anyway. He left it running while he put the wheels on my wifes chair (very slowly) so he checks the meter before I pay and it's on £21.80. Obviously I argue about that. If he's charging us for luggage he can't charge us for the time to put the luggage together. So then he say's ok call it £20. Call it £20! Bleedin' call it bleedin' £20. Ok then. But I'm not giving you a tip.

The next day I thought well I may aswell just try uber to see if they can take wheelchairs. The driver came and we got our chairs and luggage in and off we went. The car was pretty nice, the driver was awesome and it was a good trip. The estimated fare was £16-£18. I had £10 credit so according to my email receipt it cost just £6!!! The cab that we took when we arrived cost £24.
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When I had a sandwhich

I've been neglecting this blog a bit lately. I'll work on not doing that.
My energy levels are finally getting back to 'pre thyroid destruction' levels. Thanks to the synthesized thyroxine. I'll be going for a followup on Wednesday so the real hard figures will be disclosed to me.

Policy U-turn
I have started to cut eggs out of my diet. Until I can find a source that ethically collects them. I've realised how meaningless the 'free range' label is.

Diet Ponderings
I didn't eat much dairy directly anyway. Except cheese, dairy milk chocolate, and ice cream. Dairy free ice cream tastes better anyway. So does chocolate. I'm sure there is a cheese alternative that's good too.

I had these and they are pretty good. They taste almost too convincingly like bacon. The good thing is they don't contain the annoying stringy fat that gets stuck in your teeth that actual bacon does.

Is there any point in being vegan?
Well yes because I get all the health benefits of eating food that isn't full of hormones, carcinogens, antibiotics, et al. However, until more people are vegan than aren't nothing is going to change. Even if that happened meat and dairy production will still continue and will be subsidised by the people avoiding it.

More soon.

Oh I read that dairy has a bigger link to cancer than smoking does. Someone needs to lobby for plain packaging and age restrictions.
http://cebp.aacrjournals.org/content/12/7/597.full
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When someone was at the door

This guy trolls the world on instagram, apparently, because his parents are rich. Click the image to see more ludicrous wastes of money. I'm disappointed he doesn't wipe his ass on $100 bills. I'd like to think he tried it but found they just smeared shit all around his stupidly rich anus.
Jokes on him; really what he needs is some servants
to do that. Or a sort of plumbed in flushing device.

Anyway the actual post today is going to be about couriers and their inability to do their job which to be frank is fucking easy. Frank swears like fucking a lot so lets stop shitting fuck faces and be less Frank now you fucking douche nozzle (pictured above). Couriering is such an easy job it is often a mechanic used in video games of various genres.

Except when they deliver to my abode. Rather than use the intercom they gain access silently somehow. They covertly sneak around the hall. Then they lightly brush the door like it's fashioned from clitorisses. Clitorii, maybe. Immediately they start writing the "Oops sorry we missed you card." They pop that through the letter box, slamming the flap down. Boot the door and then run away before the sound reverberates on my eardrum. I need a door bell. Not just a doorbell though a NSA approved http://www.skybell.com!

It happens all the time because my wife and I do order quite a lot of stuff online.

Trouble with the rozzers apparently. I'm tempted to post things but believe it or not I do try to filter what I say. I guess I have a bit of Jeremy Clarkson in me. Not that bit. That came out wrong. Why is it so hard....

New paragraph. Let's be Vegan but not "Vegan".
What does that mean? Well it would be a little silly to have "animal companions", as vegans call them, yet not eat animals or their products. I mean hypocritical not silly. Live stock is bred for food and pets are bred for companionship. It's essentially the same thing.

Also I plan to eat eggs. I don't understand how gorging oneself on the byproduct of a chickens menstrual cycle is exploitative. They've finished with it. Unless there is a Lavish (Cock) to fertilize them.
Dairy has some ethical issues. Technically its not wrong but the mistreatment, exploitation, and cruelty isn't ethical. It's a bit weird though.  So mass market dairy products are off my shopping list.

Why be not quite a vegan? Because it's not like I've decided not to eat animals in order to say "Hey, I'm vegan." I'm not a vegan. I don't need a label.
http://www.buzzfeed.com/rachelysanders/amazing-vegan-ice-cream-recipes - yum.
http://vegetarian.about.com/od/breakfastrecipe1/r/veganpancakes.htm - that recipe will need tweaking to include eggs.

My mom and mike visited us earlier this week. If you follow my twits feed you will have seen some of the awesome stuff Mike built for our cats.
@tehste


He also built us mesh things for our windows. Which allows us to sleep without worrying that Sadie will fall out of the window.
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When I switched IDE

Integrated Development Environment
I thought I'd try Android Studio, even if it's a preview version, rather than using eclipse to create android apps. I like it.


American pancakes and maple syrup are also essential to the IDE. As is the carcinogenic beverage.

Enough about that though.

Interesting fact: DartaGnan (hard G) loves maple syrup. Strange boy.

He loves to sleep on a wheelchair. I'm not sure why. The others prefer the sofa, their beds, the rug, our bed, on their tree, or on the cardboard sofa we got them.

I'll write more soon. I'll leave you with some original artwork:

it became this icon:


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When I waited

I've spent a lot of time waiting. For things to get better, for things to get worse, and for things. It's often wasted time. Time wasted isn't actually wasted. Or so the intellectual would argue.

They may bring indefinable metrics like enjoyment into it. Yeah I'm enjoying waiting around for 2 hours before my scheduled appointment, which obviously won't be on time, for the transport. It gives me time to write this. At least time to start this.

Bananafuckingrama that's the theme this year. A radioactive bull shit infused catastrophe. I'm not talking about MH370 again, am I? A scapegoat for the delivery of a large nuclear device to detonate over the USA. Not to bring destruction but so the EMP knocks out the power grid. To bring chaos.

No that's too convoluted NaSA could easily blaim the sun for that. It's funny how Russia 'illegally' annexed Crimea much to the irritation of international boobs. Chafing jokes aside. There were no sexed up dossiers. No suicides. Just a coincidental hijacking.

I'm making light of world affairs.
I must add a disclaimer. All views expressed are actually Daniel Mills' and not no one elses.

Scapegoated.

When people have agendas

Right so I have been super busy recently because of my professional and personal life. The time I have available in a day to spend awake is hampered at the moment too... Yes my thyroid results came back. I had to wait to see the GP to see the actual results since obviously the patient has no business even attempting to understand what is happening with their health. Obliterated to smithereens most likely. My thyroid is MIA. So hormones must be ingested daily. Unfortunately my GP was a little cautious prescribing me with hormones so it's going to be a slow path to normalization.

The good news is my heart rate is now always slow. There are tons of negative things though, as this rather beautiful visual aid demonstrates.
Source: http://en.wikipedia.org/wiki/Hypothyroidism
I've noticed that it's been harder to get into the zone - where thinking outside the box is a meaningless bit of smalltalk (German for small talk). The zone is where ones head  must be to be able to program. It's a magic place. I've developed a technique - well adapted the technique all men use to avoid listening. To respond yes and yeah to everything. It lets me avoid having to leave the state where I am in the zone at full flow to enter the real world to consider the question. Yes the brain is a super fast computer but that switch takes a while and reaching flow again takes forever. There are some negatives to answering yes to everything but a lot less than swallowing a radioactive iodine pill...
The Zone is known as Flow

Distractions are bad especially when I'm finding I am easy to be distracted. So productivity is suffering. Somehow I'm still functioning and getting stuff done which is all that matters. Though it takes a toll and so on days like today I sleep way too much.

This video is amazing. I watch it often. I guess it's akin to reading a silly book of extraordinary examples of blatant witchcraft. But without then accusing many, many people of witchcraft during centuries of persecution...

Why is there religion? Why is there professional sport? Why is the distribution of wealth and resources so unfair? What sort of society punishes, stigmatises, and increases hardship on the most vulnerable? Why does flight MH370 matter so much? Why all the secrecy? The media has been misleading people. Why? Is it linked to 9/11? The trident. What does it mean? What's happening with Ukraine, Russia and Crimea. Why did China abstain?

How big are the biggest 'problems'? How insignificant we are. Really.

Further Reading: http://en.wikipedia.org/wiki/Flow_(psychology)

Oh here is a contradiction. If you're in the UK please consider signing this.
motion-of-no-confidence-in-the-way-in-which-iain-duncan-smith-has-managed-the-department-for-work-and-pensions
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When it was rare disease day

Explain that.
Today Friday 28th February is Rare Disease day! The disease I have is pretty rare. 0.006r% of the world wide population has it. That's 1 in 15,000.

Today has been a very nice day. Good news followed yet more praise. Professionally maybe everything will come together. The next few years will be critical. Exciting times ahead.

Also I decided to add a couple more commitments to improve my productivity. I'd like to get into politics (we shall say) someday but right now it's a distant dream... It'll start as a book "Dave's soo camp."

... I'll have to keep this short tonight.

When the JobCentre Did Fuck All

Recently I came across this blog: http://johnnyvoid.wordpress.com/
This post was originally a comment but I thought I'd expand on it a little and post it here with some pictures...
When I was out of hospital following heart failure (I was lucky not to die), I took a break from uni for what was supposed to be two years to fully recover and recuperate.
One of the first things to do was to attend an appointment at the confusingly named JobCentre. They had sent a letter to me following my social workers application she made for me to the even more ridiculously named Employment Support Allowance.

Naively I was expecting this to result in finding temp work in an office or something. The JobCentre is down the high street so I went there on my own, the weather was fine. It only took me about 20 min. I get to my appointment on time and I was greeted with: “Oh I see you’re in a wheelchair. I’ll just put you into the right category so you wont need to come here again.”
I was pretty wound up by that. I said “No, I want to work even if it’s just a job doing basic office work -I have experience working in an office…” She asked what other sorts of things I could do. I said: “anything as long as I can do it sitting down.” I gave her a list of my qualifications and told her about the units I’d done at uni. I’d been originally doing a bsc in computer animation but I’d switched to a ba in animation.
While at uni I’d been taking freelance work doing database web apps / websites / and hosting of websites. As well I ran my own registered company when I was 18 back when I was walking -it was a virtual pet software. I wound it down and it completely ended when I was 22 around the time I became a dribbling turbo mega spaz -the actual reason is because I wanted to do something else with my life.
I noticed how frustratingly slow she was typing with one finger obviously not adding in anything about the specialist software, video editing, or programming. I added “I can actually type properly and could do your job better than you.” Or some other such cheeky remark which, I felt, was justified by her being such a prejudicial douche-nozzle when the appointment began.
When she’d finally finished I left and took the elevator down stairs and saw all the dilapidated computers on these weird high-up tables which people stood at to find Jobs. I wondered why I had not been told to checkout some jobs and apply from a more accessible computer.
Several months later. I realised that the JobCentre was never going to write to me or ask me to attend a training thing like they were supposed to. I was getting pretty depressed by the situation. Being jobless and living in the middle of a densely populated council housing area in Portsmouth wasn't the only thing bringing me down.
The cuts to social care were just starting to really get ridiculous. My care package went from 40hrs per week to 5 and a 1/2 for a deteriorating, life shortening, genetic condition. Justify that IDS. So  then I had 45 mins with a carer everyday rather than what I used weekly about 3hrs a day and 8hrs on Tuesday so that I could get the shopping, get help with cleaning the flat, open and close the windows as and when needed, and all the other things that are actually impossible for me to do like making a bed.
So for a year I lived in deteriorating filth. My mum would come visit and clean every 3-4 months but I live 300+ miles away from her. I had to have showers given to me by Adult Care Workers who rush everything because they don’t have time. I'd be shivering in the bath seat because they didn't have time to wait for the heater to warm up. They'd make me a sandwich and stick it in the fridge. That was lunch. I’d microwave a ready meal for dinner. They'd prepare and put a hot drink on my table for breakfast, wash my dishes from the day before, make the bed, and then leave taking down the trash.  And repeat tomorrow.

I'd spend the rest of the day struggling with laundry, ordering food on-line, and doing other things that able people take for granted. I didn't have time/care to dust and I couldn't use a mop. My walls were white. My lights had no shades. There were no pictures on the walls. The windows were either open or shut all day and night. It was such a depressing existence. Not really a life.
Once I had the bathroom finally adapted so I could use it independently. I did and got by without carers since they are not supposed to do the things I needed them to anyway.

Eventually my mothers partners eldest son got me a job at the company he works for. I could do it from home even though the office is in Chester. Things got better. I'll mention my favourite psychologist and his hierarchy of needs. Because it's relevant and right.

My health stopped deteriorating so fast – it still does but it's more stable now. I'm married now. We only have one light bulb exposed and stuff around our home is prettier. The problem is not just something disabled people are faced with. It's something all unemployed people deal with.
The best thing was going into the JobCentre after eighteen months and saying I'm employed no thanks to you. I showed them my employment contract which they photo-copied for ceremonial reasons since my folder probably doesn't exist. I’d got off benefits after 18 months… Originally I thought I'd only be on them a few weeks. Welfare my arse.
They should simply sack the workforce at the JobCentre and fill all the vacancies with the unemployed. Let them taste their own medicine.

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